We have not managed to write for ages, as we have no internet in our new house, long saga involving overseas call centres and rubbish customer services, but will not rant about it.
After a quiet few weeks we have quite a few appointments looming. an important one happened on monday this week with her hips. It started off not well, as the ultra sound was difficulty to interpret. so the Dr said the hip was dislocated. We had an X ray and they are ok which was a relief. The right hip is still outside the normal range, but only by 2 degrees. Our consultant things we can start to look at removing the brace which is fantastic. I can also take her swimming so I have been out to get swimming things for her.
We have an eye appointment and a bladder appointment coming up. Her eyes seem so much better so we hope that that will be fine. Her renal test is a bit more of a bigger deal and will determine how her bladder is working & so how we will mange her continance in the future.
Summer is doing well, trying to sit up, staring at us when we eat, so I think food is soon going to be part of her life!
Thursday, 25 October 2007
Thursday, 4 October 2007
New House
The move went very well and without a hitch. I'm sure it helped have Dad do our conveyanceing. Thanks Dad. The house is in much better condition than we had thought making it easy to get comfortable so we can attack it slowly, 1 room at a time.
The biggest challenge with the house is what to do about the downstairs. We do not know at the moment whether Summer will need a downstairs bedroom/bathroom so don’t want to do too much that we would have to undo in a year or two. It still feels very uncertain whether walking/transferring will be possible or just difficult for her?
We have arranged for some people in our church (Meadows Community Church, Leicester) to pray for Summer after the first Sunday meeting of every month. We will of course be hoping to see continued improvement in her development and further movement in her legs. Not to mention that the hydrocephalus stays away, which it is at the moment. When we do the physio on her legs and feet I’m always hopeful to see her toes wiggle but not yet. I will continue to look.
The biggest challenge with the house is what to do about the downstairs. We do not know at the moment whether Summer will need a downstairs bedroom/bathroom so don’t want to do too much that we would have to undo in a year or two. It still feels very uncertain whether walking/transferring will be possible or just difficult for her?
We have arranged for some people in our church (Meadows Community Church, Leicester) to pray for Summer after the first Sunday meeting of every month. We will of course be hoping to see continued improvement in her development and further movement in her legs. Not to mention that the hydrocephalus stays away, which it is at the moment. When we do the physio on her legs and feet I’m always hopeful to see her toes wiggle but not yet. I will continue to look.
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