Tomorrow...

Its the night before we have to take summer in for surgery on her hips. This is by far the least scary of the surgery's to date, the first was completely unknown and the second was brain surgery! This is certainly the hardest to deal with so far though.

We have had her home for about 6 months, got to know her, what she does and doesn't like but now it feels like its all going to change again. We don't know how she will sit in a seat, get in a car, how to lift her, fit her in a pram, what clothes she will wear, how to change her nappy or settle her when she cries. We just don't know how anything will work after tomorrow morning and that is scary.

Our church prayed with us this morning that all these things will be sorted out; that she will be well, that the surgery will be a success and that in 12 weeks she will be out of the plaster and back to exactly how she is right now, the perfect girl we love so so much.

New Years Eve.

Yes its true, what a way to start the New year. Summer is booked in for surgery that morning. I think the consulant cancelled some things to fit her in, so we cannot complain too much. We had the pre op chat where we consent to the operation. It sounds like they may well be breaking both her legs to get them back in the right position which sounds so horrible to me, but apparently they heal at this age in about 4 weeks.

I have been thinking as the year has almost finished about the past 12 months and I can say for myself ( Kathy) that it has had one of the worst and one of the best moments of my life, and lots in between. Our blurb on the blog says that we do not know where this journey will take us but we will trust God, and that is still the case, not sure how we would of got through this on our own.

One great thing about the operation being delayed is that I can go mad and dress Summer up in al the pretty things she has not been able to wear, which is great fun for me.

Christmas greeting to everyone, in case we do not post anything else for a while.

I leave you with Summer enjoying playing in the christmas decoration box, who needs presents at this age!

Change of Plan!

Stop press. Summer is not going to have the operation tomorrow. I rang to let them know that she has a stomach bug & cold, so it will be rescheduled when the consultant has a space. To be honest we are both a little relieved as this was just a really busy week and we could do without anymore stuff. We are keen to do the Op though, so we pray a date will be available soon.

Surgery on Wednesday

Quicker than we thought Summer is now booked in for surgery on Wednesday of this week. She has to go in for Tuesday afternoon and then back in in the morning. She is still a bit poorly with a cough and the runs. I hope this is getting the runs out the way before the brace is on as it will be much harder to manage such things then.

Please keep praying for us all. The effect it has had particularly on her hydrocephalus has been amazing. I cant wait to see the same happen on her hips now.