Yesterday Summer reached the grand old age of six months. How did that happen?
She had a dinner of pureed carrot to celebrate!
We had our renal scan yesterday. They were amazed at how chilled Summer was. As long as she has something comfortable to lie on and has lots of people giving her attention she is happy!
We were never going to get "good" news about her bladder and bowels as the nerves leading to them do not work, however it was good that there is no damage to her kidneys.
We do not have to do much at the moment, but when she is a little older we will obviously have to look at how to manage toileting. We have a really good specialist nurse and there are loads of different things & techniques out there.
In the course of discussion this nurse mentioned another couple who have a 16 year old with SB who adapted their house & thought they would be willing to chat to us, which might be great, because we have not yet spoken to anyone who has, or has a child with Spina Bifida.
I am off for the week with Summer as the house is being rewired. I am sure Nic will have it perfect by the time we return?!!!
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Dear Nick and Kathy I just want to rejoice with you that little Summer passed her eye and renal exams with flying colours - AND manages to be so chilled about it! Well done! Praise God!
I'll pray that the alterations to the house go smoothly for you Nick and that the 'girls' enjoy their little break too!
Lots of love, Nicolexxx
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