I cannot believe it has been so long since we wrote on the blog, its the 6th of July already ( HAPPY BIRTHDAY DAD).
This going back to work thing is hard, I just collapse in the evening and then it is time to get up again. I am enjoying work, its a little scary because I have to use by brain and remember to talk " grown up" but it is nice for a change.
We went to Nottingham last thursday to see Summers Urologist and to see an Orthopaedic consultant for a second opinion. We went with the blessing of our consultant in Leicester, we just wanted another opinion because Summer does seem to be quite complicated in the bone department.
If I am honest I thought he would confirm what our consultant had told us about his plans for treatment, but it turns out he thinks very differently. Our consultant wants to carry out an operation on her legs, where as this Nottingham consultant feels that it would probably not make much difference functionally to Summer, therefore just leave her alone.
Wow.. I have no idea what to do. We are seeing our consultant tomorrow and hopefully the two of them have manged to talk and I am just praying that the right course of action will be really evident to us all.
Summer is doing really well, no more words, but she is now crawling, almost properly which is great. Will keep you posted on outcome of the meeting.
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2 comments:
Hi there,
I am natalie's friend (also slightly crazy) I have just started to read your blog and wanted to let you know that I have given your details to jo and AAron who are my friends who have just found out at 30 weeks that their baby has Spina bifida. I really hope that she gets in touch with you.
God bless you all heaps.
Fran
Hi Fran, thats great. Can you let them know that our cokmputer is down, but phone works and we would love to hear from them if they want to speak to us now or anytime in the Future.
Kathy, Nic & Summer
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