Update

a quick update.

nic is spending the night with summer and Kathy is back at home. Her parents are staying. Summer is responding much more like the one we know which is good news. All prayers still very welcome. it looks like we will be in hospital about 5 days.

We will update when we can.

Summers back in Hospital

Summer health has deteriorated and she has been admitted back into Leicester royal infirmary. She became very lethargic and while I initially thought it was just Daddy paranoia we decided to act and take her to A and E. She has been put on antibiotics for a minimum of 48 hours while further tests are done for meningitis. She has stabilised after being given some fluids and initial antibiotics and has recovered some of her spark! This may or may not be related to the weight loss.

Please pray for Summers health and that she does not have any infections. And also for us as a family to get through the next few days.

Also please spread the word about this change to get as many as possible praying for Summer.

Specific Prayer Request

We had a visit from the health visitor today and when she measured Summer her weight had dropped from the last measurement about 4 days ago. Obviously this is not good so the health visitor is coming back tomorrow to see if she has grown in the last 24hrs before taking any further action.

This is worrying for us both so please pray again that she will grow and quickly. This has worked before when we prayed for rapid weight gain and certainly can again.

Thank you.

We are Home!!!

Its hard to believe but all three of us are now sitting in our living room at home!! We were originally told Summer would need another week recovery but she has done so well they packed us off early!!

Of course we have lots of follow up appointment's, orthopedics for her hips which are dislocated due to the breach position, urology and neurology for the spina bifida issues as well as the mid wife, health visitor and pediatricians. I won't hand in the hospital parking season ticket just yet!

So tonight is our first night with our beautiful daughter altogether at home. I doubt we will sleep and I am sure we are going to be exhausted for the next 16 years....we cant wait!!

Things I have.

I have the most beautiful daughter in the world.

A husband who has been my rock and is already a fantastic dad.

An amazing God

Fantastic Friends and family

Ankles the size of an elephants!

Visitors are welcome....just call first!!

She’s in a bit of a routine now, cry, eat, sleep, cry, eat, sleep ... a routine many of you are aware of I’m sure.

We are of course anxious parents. Either she is crying too much or too little, sleeping too much or too little. She has a fine line to walk to keep us away from the many nurses there are around all trying to reassure us that she is fine.

We are really privileged to have so many professionals around us during this first couple of weeks. All those little questions and worries are answered long before any major panic begins to set in!! We have also had a couple of male midwives answering questions on an issue I would before have thought it impossible for a man to know so much about!!

We would love to have some visitors so if you would like to visit little Summer and parents please just give me a call on my mobile phone; 0772 7753603. Of course if it is not a good time for us we will let you know so please don’t be offended. I have to look after the family first of all!

Finally it is easy to see by looking at all the other children on the ward just how lucky we are with Summer. There are so many sad stories of pain and suffering around us that have made us realise just how much of a blessed family we are.

Summer at 3 days old

Nic and Kathy asked us to post this photo for them. She's really beautiful. Sue and Mike.