Moving House

Well it has been a quite few weeks. Summer is doing really well, smiling lots, specially at Mummy, eating lots and sleeping lots too. every night from 7pm to 6am without fail!! How would we cope with all his and a difficult baby? Thankfully we don't have to at the moment.Anyway I'm now off work till Tuesday.

We are moving house on Friday after much wranglings. Its a bigger house with more space for Summer and us all which will be great. Its right in the middle of most of our friends which will be really great, especially for Kathy. There is a lot of work to do however, it hasn't been worked on since it was built 60 years ago with the same owners who are selling it to us!

Summer still has he brace on and with her growing legs she is getting very wide! Her head is still not growing more than it should which is brilliant. How much were we all praying for the hydrocephalus to go away and now it seems like it has. We were told that if the surgery she had works in the first few months its likely to work more permanently so the last few months are really encouraging.

Born to be Different

happy in daddy's arms

I watched a program last night on channel 4 called "Born to be different". It is a series that follows a group of children born with different disabilities including a little girl with SB. I was watching expecting to be upset and yet I was not. Some of the children were more disabled than Summer, some less, but all of them were there own characters and very much loved.
I was chatting to a friend who believes that by having people on this earth who have different needs it makes us into better people.
I would do anything to change what has happened to Summer, no one wants their child to have difficulties in life, but I really believe that she will teach us & those around us how to love properly.

I also believe she really is the cutest baby in the world...but thats a mothers right!

Hip appointments

I took Summer yesterday for her hip appointment.
When they scanned her, her hips had not changed position, which is good because they have not got any worse, but quite frustrating because they have not got any better & there are no answers to why. Her Right hip is now a lot more stable, which the consultants are pleased about. So it looks like she is in the brace for probably a minimum of two more month’s full time.

We are still waiting for our eye appointment, but she does seem better at turning to her right a bit better. (Especially if the TV is on!)
She has her teacher coming on Friday, so hope she is in the mood to learn.
Below is one of my favourite verses, it reminds me that someone else is in charge & they know what they are doing!

Trust god from the bottom of your heart;
Do not try & figure out everything on your own,
Listen for Gods voice in everything you do, everywhere you go;
He is the one who will keep you on track.
Proverbs 3, message version.

Hospitals & Strawberies

Summer is having a slightly extended morning sleep. so I thought I would grab the opportunity to write. We ae started another round of appointments. We are off to a new hospital to add to our collection in Nottingham, urology this time this afternoon. We have another scan on monday for her hips and we are really praying that the improvements have continued. She has an OT visiting and she also has a teacher already, they do start young! I believe she is coming with a big bag of toys, so Summer should enjoy it.

It looks like our house move is going ahead in the next few weeks, which is great, but slightly scarey as the house needs loads of work doing to it, but one day I am sure we will get there.

I have mountains of strawberies in the fridge which I need to do something with, so I am off to find ideas on the internet, jam possibly....we will see!

Family Portrait

The new Allen family at a friends wedding on Friday, a rare family portrait!!

Things going quietly at the moment which is nice. We have our first Urology appointment this week at Nottingham City hospital making a change from Queens. they did do an early scan to check there was no immediate problems but this will be a more thorough assessment of probable outcome. This will be the benchmark that we will see the healing against!!

The last 2 Sundays at Church I have been prompted to continue in earnest praying for Summer and us as a family. As things have quietened and become less urgent the prayer requests we have made have dropped, we need to change this. It was suggested today about having a regular time after a Sunday service, say 1st Sunday of each month where a few of us gather to pray for her and us for a few minutes. I look forward to that starting soon.

I also need to say just what a good baby she is. Its now about 2 weeks at least that she has gone to bed at 7 and woke at 6.30. This parenting stuff isn't nearly as tiring as everybody makes out!!