I spent about 45 minutes yesterday on the phone to a lovely lady who has 3 children, her youngest is a gorgeous ( seen a picture), shoe obsessed teenager, oh and she happens to have spina bifida.
Talking to her mum, Summer sounds very similar functionally to what she was like when she was small.
This is the first time I have spoken to anyone else who has experience of SB and it was so positive. This girl uses a wheelchair, but is totally independent, is studying, playing tennis, driving, staying out too late and being a normal teenager... yes there are hard things too, but it was really encouraging.
Thankfully we have a few year to save up to pay for driving lessons, which by then will probably be £80 an hour!
Summers still practicing sitting and finger food, she likes broccolli, but such a mess!
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2 comments:
I should worry more about the staying out late than the driving lessons ! If I'm not mistaken people who rely on a wheelchair can get help from Motability for driving lessons.
Love Gerry and Jason.
Hi Kathy and Nick
Greetings from Cyprus where I am keeping up-to-date with Sumer Grace's progress All good news as far as I can observe. You don't seem to be receiving all my comments but that may be because the printing on the blogger box is all in GREEK. Lots of love to you all Mary X
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