Thursday 29 March 2007

Bad News Delivered Well

We went though the results of the MRI scan baby had last week and our baby’s now has hydrocephalus. 13.5 mm, in the ‘Moderate’ hydrocephalus range. After yesterdays scan we were prepared but it is still very hard. We knew it might happen and was even likely too but it could have not happened at all or it could have been later.

Of course again we don’t know what impact this will have. We are told 60 – 70% chance of there being little effect which is good and also that the baby has had 29 weeks of good brain growth is something to be grateful for. She told us of baby’s with twice the volume of water and half the age. That must be so hard for those parents.

It is likely now that there will be more surgery in the baby’s first few weeks which will again be difficult. We are also not so sure we want to continue with so many scans. They are hard and there is so little that can be done. Maybe best to just wait and see? We will talk with our consultant.

We were very glad to have met with our very kind Neuro-consultant who, in contrast to yesterday, gave us this news in the most positive way she could have.

I don’t know what else to say. We asked for God’s will to be done and for this to have a positive effect on our lives and those around us and we have to believe it is. We would certainly like to see some of the miraculous healings though. We continue to pray and keep going as best we can. I have a nursery floor to lay this weekend!

3 comments:

Anonymous said...

Dear Kathy and Nic

I can understand your confusion with different consultants opinions, it must be very hard. I am glad you are getting positive results with your Alpha you need the comfort this must give you. Thinking of you on your journey, but you are not alone
Love Mary Cyprus x

Anonymous said...

Dear Nic and Kathy,

I saw your Pregnancy Diary in Practical Parenting and just had to come and visit your Blog to see how you are getting along.

I was sorry to find you've had further bad news but very happy to see you coping so bravely and being as positive as you can.

I am sending you and your wonderful baby bump all the positive and healing vibes i can and wish you all the very best!

Love, support and a big hug,
Wendy Barnett

Anonymous said...

Kathy, Nic and baby girl...

I have read your inspiring story in Practical Parenting and I have seen your beautiful daughter's scan photos. You must be so excited to meet her!

It is unfair that you are travelling this difficult, uncertain road, but make the most of each day - today love your bump and enjoy being pregnant and let tomorrow worry about itself. If the worst happens tomorrow, God will give you the grace and strength to deal with it then - don't let worry rob you of the joy of today.

Praying for you and your little girl,
Karen